World IBD Day: In celebration of community

Throughout the day, I have posted about IBD, and IBD awareness- there are many blogs and foundations that provide support, education and connection among the IBD community. They give me ideas for blog posts, they give me feedback on blog posts, and while I am all about educating people about symptoms and treatments (and warn them of quacks), I think another aspect of the disease that often is underestimated is the loneliness that many people feel with it. And IRead more

Review: NYT in-depth report on Crohn’s Disease

I love the New York times. Not only does it have a LOT of their information for free online, it also covers most aspects of modern life. Their health section is truly to be recommended, the writers manage to break down complex matter for interested lay audiences, just as myself. I prefer them over wikipedia most of the time, because of quality control. Anyone can edit a wikipedia article, and I simply trust the NYT more. I just found outRead more

Crohn’s, Weight and Body Image (and a dash of feminism, for good measure)

I have always had weight fluctuations. Spoiler alert: All of them had to do with Prednisone…. In the eighties, there were not a lot of options to treat Crohns- steroids and Azulfidine was it. When I was about ten, Imuran came on the market. It helped, but usually only in conjunction with….drumroll… prednisone. So over the years, I’ve had my fair share of steroids, tapering etc. With every steroid cycle, I gained weight. You see, I was HUNGRY. And thenRead more

Growing up with Crohn’s- a shitty childhood?

My dear friend Bea from http://www.notsocheesykitchen.com and I talk about health on a regular basis. Not only because she has been an amazing supporter and friend in the past few months, but because life has thrown her her own set of health challenges- both of her beautiful daughters suffer from a condition called galactosemia. It’s a genetic disorder that affects the metabolizing of milk sugars. When unrecognized can be deadly, especially in infants. As a result, Bea has become aRead more

Diets and Superfood Fads

If I hate something with a passion, then it’s all these diet fads that show up and supposedly cure everything from ingrown toenails to cancer and of course Crohn’s and Colitis. I like it even better, if they are advertised by people who claim to have suffered from IBD, and then “cured” themselves by “eating right.”  Usually, these people had Crohn’s for less than five years. I wish them well- because their world is going to crumble when they haveRead more