Friday Fun: a commentary 

Today’s post is from my brilliant friend B. He has cerebral palsy, and his humor is a constant inspiration. Post-Event Cerebral Palsy Adaptation Report #8748373-6D Scenario: overcrowded department party. Human density: 3 elbow-endowed humans in wool suits per square foot. Problem: greater than zero chance of cataclysmic spillage of staining liquid and/or sauce due to jostling or critical loss of balance and/or maxillofacial injury at the hands of gravity. Solution: ordered white wine instead of red to minimize staining potentialRead more

Word Warrior Wednesday: “Oh the Places you’ll go” (Dr. Seuss)

Growing up in Germany, I did not know about “Green eggs and Ham” or “Yertle, the Turtle” and other things. I am alive people, I am breathing, it’s ok. I find Dr. Seuss books cute, I admire the artwork, but they don’t evoke that childhood feeling of your parents reading a book to you, or you slowly figuring out the words on the page. I have my Euro equivalents, no need for pity. There is one exception however. In 2004-5Read more

World IBD Day: In celebration of community

Throughout the day, I have posted about IBD, and IBD awareness- there are many blogs and foundations that provide support, education and connection among the IBD community. They give me ideas for blog posts, they give me feedback on blog posts, and while I am all about educating people about symptoms and treatments (and warn them of quacks), I think another aspect of the disease that often is underestimated is the loneliness that many people feel with it. And IRead more

How does your garden grow? (Self-care)

My friend Harriett and her fencing coach have a lovely expression when people ask them why they fence:” keeping the crazy howler monkeys in your head at bay.” I’ve heard “fighting your demons”, “being mindful”, “the mind-body balance”- call it what you want, but everybody needs something for themselves. I prefer self-care. Some people are crazy about the coloring books for grown ups, others do Yoga, Meditation- what have you. You need to have something that reminds you of yourself,Read more

Word Warrior Wednesday: Whatif (Shel Silverstein)

It’s been a while since I posted one of these- mea culpa! Life has been super busy. Today is a poem by the amazing Shel Silverstein. I first got introduced to this poet when I was an exchange student at Concordia College in Minnesota. I was working the late shifts at the library (one of the best jobs I have ever had by the way), and I was shelving education books. “oh, this is one of my favorites!” cried oneRead more

Being your own person

I recently read Sara Ringer’s post on dating a man with Crohn’s Disease. In the post, she elaborates on how, yes while her partner can relate to her Crohn’s, it’s not why she’s dating him. The piece really resonated with me, because it is something that I often see in the IBD community- letting your disease take over and define you. Of course, when you are in pain, running to the bathroom 40+ times a day, fighting with ill-fitting stomas,Read more

a change in perspective

Remember how in the last post I wrote that the worst that could happen had already happened? Yeah, scratch that. There should be separate categories for “the worst that can happen to yourself” and “the worst that can happen to someone you love.” So, January 24, 2016, my dog needed emergency surgery because of a bowel obstruction. Yes. Exactly one year after me. If you are of the opinion that pets aren’t as important as humans and somehow feel offendedRead more

Resilience and Determination- a guest post, part one

Today’s guest post is from James Gunter. He lives in Sheffield, UK, and he loves fitness. He was diagnosed with Crohn’s Disease in December 2014. This is his story. Fitness has always played a big role in my life. I was very active, I did parkour, climbing, squash, was about to get into the national squad for the aikido martial art and had never even drank alcohol or ever tasted it. I was the healthiest person I knew and mostRead more

Word Warrior Wednesday: “You fight and you survive”

Today’s Word Warrior Wednesday is a quote from Jamie Weisman, whose book “As I live and Breathe” I’ll review pretty soon. It’s pretty powerful, and so I’ll leave it un-commented. “Most people live in fear of some terrible event changing their lives. For the chronically ill, this terrible event has already happened, and we have been let in on an amazing secret. You fight and you survive. There is no other way. You adapt, and your life changes, but inRead more

On Gratitude and Awareness

Thanksgiving came and went, and I have been thinking hard about writing a gratitude post. Do I have things to be thankful for? Absolutely, my cup brimmeth over and it would have been a veritable Oscar speech. I could fill the pages. Someone told me, “Thankfulness is something that you need to practice everyday, it’s nice to have a holiday for it, but if you don’t practice gratitude everyday, no holiday can help you.” I was just going to sayRead more