Remicade vs. Inflectra
About three months ago, I received a letter from my insurance, saying they wouldn’t cover my Remicade (infliximab) infusion any
Tag: IBD
You’re not a burden
The New York Times has done it again. First, they invited a racist senator to write an op-ed, didn’t read
A Pandemic Diary: Stay home and keep your distance. Please.
It’s been roughly two months since we started social distancing, working from home, wearing a mask, staying home. And everywhere,
Interview: Nigel Horwood, Author of “Wrestling with the Octopus”
Tell us a bit about yourself: When and how were you diagnosed? In October 1977 I was at college and
Earthquake Supplies for People with IBD
Throughout the years, I have lived in several places that were prone to natural disasters. New Zealand is earthquake territory, so was California (even though to a lesser extent), and Indiana has tornadoes (thank god, I never had to experience one). The earthquakes I did experience were really small, a little rumble. Now however, I live in the Pacific Northwest, where within the next 50 years, a major quake (around 9 on the scale) is about to hit, another great Cascadia Earthquake.
New Year’s Resolutions for People with Chronic Illnesses
If you’re anything like us, you probably spent a good chunk of 2018 dealing with your chronic illness, adjusting to new developments and learning from the hard knocks along the way. We’re not big believers in New Year’s resolutions, but we like to make lists and bring visibility to chronic illness, especially of the invisible variety. These New Year’s resolutions are an accumulation of some insights and hopes for the new year. We know that different conditions require different handling and that not all of these resolutions will work for everyone. We all have different experiences and life situations and that’s cool! But we want to share these resolutions to show solidarity, help allies support friends and family and let others with chronic illness know: you’re not alone.
Update: Same procedure as every year
Friday, I had my annual colonoscopy. This year, I tweaked my prep a little bit. I splurged, and got lobster
Minimalism and my Discontents
Does item x bring me joy? Does its energy weigh me down, or is the chi trapped in the room? If so, get rid of it. Box it for a while some say, then get rid of it.
Simplicity. Clarity. Think of what you need, not what you want. What could be wrong with it?
Dear Public Restrooms….
I wish… …you were clean, all the time. I would happily pay a quarter every time just to have that
Dentists…
I hate going to the dentist. Not because of the pain (not a fan of it, but it’s not awful),
The Morbus Crohnicles 