Spoonie Essentials Box 1: My Review

I already told you about the Spoonie Essentials Box, and lo and behold, my first box arrived yesterday!   Check out the color combo and the fonts! Uplifting and dynamic, looking like handwriting, yet professional! (that was the geek in me speaking!) I got the Small box, and here’s what was in it: A super sweet note on the importance of self- care  a heart shaped bath bomb a spoonie necklace a pair of xo socks bag of candy aRead more

Favorite Medical Shows

You’d think having been in the hospital so often makes me sick of them, and not want to watch medical dramas in my free time. Or, that I’d really be pissed about medical inaccuracies- eh. In fact, I love em. Grey’s Anatomy: I started watching Grey’s when I was in Grad school, as an stress relief so to speak. Soon I began to see similarities between academia and what the young doctors went through. A world/job which takes over yourRead more

Insomnia- I can’t get no sleep

Deep in the bosom of the gentle night Is when I search for the light Pick up my pen and start to write I struggle, fight dark forces in the clear moon light Without fear, insomnia, I can’t get no sleep Me quoting  Faithless lyrics of course shows my age and that I am a true child of the nineties. Oh well. Having insomnia however, is a (fairly) new one for me. You see, I can’t remember not having anemia,Read more

10 Things to take to the Hospital with You

IBDers often are hospital frequent flyers. While I don’t keep a packed bag around, over the years, I have gotten a routine down, and so have my loved ones in case I am not able to pack my bag. Here is what I find essential to take to the hospital- for practical reasons and because I need them for my mental well-being (which is equally important). Update Oct 29: I have included feedback that I got from the members ofRead more

What to wear…. with a transrectal drain and other Tipps

As I wrote in a previous post, I had a huge infection after my first two surgeries, that required two more surgeries, in which they extracted about a liter of pus, washed me out and tried to get the environment as sterile as possible. In spite of targeted intravenous antibiotics, I kept developing abscesses in my stomach. This is apparently not unusual- I mean, my stomach perforated, all the bacteria had new room to grow, and my body was ratherRead more

Diets and Superfood Fads

If I hate something with a passion, then it’s all these diet fads that show up and supposedly cure everything from ingrown toenails to cancer and of course Crohn’s and Colitis. I like it even better, if they are advertised by people who claim to have suffered from IBD, and then “cured” themselves by “eating right.”  Usually, these people had Crohn’s for less than five years. I wish them well- because their world is going to crumble when they haveRead more

My Life on Hold

Dear Medical Facilities around the World: Change your background music when you place people on hold. I know that at some point some study was done that classical music supposedly calms people and changes their mood for the better, but you know what? It’s not true. Here are the most played classical pieces when you are put on hold on the phone, based on my experience: 1) Mozart- Eine kleine Nachtmusik, most often the third movement. 2) Strauss (junior andRead more

Herbal Supplements for Healing

Disclaimer: I am not a doctor (actually, I am, just not that kind of doctor). I also don’t endorse any particular brands over the others. My criteria for buying are: convenience (how far do I have to go to get that stuff?), practicality (I have no use for powders etc.), price (I am willing to pay for stuff, but within reason). I don’t know whether they help- between the painkillers I am getting and the “regular” prednisone, and the twoRead more

Best of Crohn’s comments: a list

I previously posted this list on a social network site, so apologies for cross-posting. Since then some stuff got added. These are comments and suggestions I have heard since I was a child- so at some point I started collecting them for fun. I used to get upset and angry, but now I think they are just funny in their warped, bizarre way. Here we go: “Crohn’s, yeah, that is one of these psycho-diseases. “You know, a lot of theseRead more