Pandemic Reading: Travel Writing

It’s week 3 of the social distancing. I am still working, doing what my school calls “Distance learning Delivery”, that is something of a hybrid form of online teaching. I usually drop a recorded power point, or a screencast for my students, together with exercises and check in with them on Thursdays. There have been bumps in the road, but I think all in all it has been working as good as it could have. Still I wish I knewRead more

Earthquake Supplies for People with IBD

Throughout the years, I have lived in several places that were prone to natural disasters. New Zealand is earthquake territory, so was California (even though to a lesser extent), and Indiana has tornadoes (thank god, I never had to experience one). The earthquakes I did experience were really small, a little rumble. Now however, I live in the Pacific Northwest, where within the next 50 years, a major quake (around 9 on the scale) is about to hit, another great Cascadia Earthquake.Read more

My 2019 Lists

It’s the last day of 2019. I thankfully was stable health-wise, so there isn’t much to share about my health year. I can share books, podcasts, and TV shows that I consumed though, in the hope that they may be entertaining to some of you. Books I’ve read (sometimes re-read) and enjoyed in 2019: “American Gods” by Neil Gaiman. I read this with students, and truly enjoyed it, especially the outside perspective on the US, from 20 years ago. “TheRead more

Spoonie Essentials Box 1: My Review

I already told you about the Spoonie Essentials Box, and lo and behold, my first box arrived yesterday!   Check out the color combo and the fonts! Uplifting and dynamic, looking like handwriting, yet professional! (that was the geek in me speaking!) I got the Small box, and here’s what was in it: A super sweet note on the importance of self- care  a heart shaped bath bomb a spoonie necklace a pair of xo socks bag of candy aRead more

Favorite Medical Shows

You’d think having been in the hospital so often makes me sick of them, and not want to watch medical dramas in my free time. Or, that I’d really be pissed about medical inaccuracies- eh. In fact, I love em. Grey’s Anatomy: I started watching Grey’s when I was in Grad school, as an stress relief so to speak. Soon I began to see similarities between academia and what the young doctors went through. A world/job which takes over yourRead more

Insomnia- I can’t get no sleep

Deep in the bosom of the gentle night Is when I search for the light Pick up my pen and start to write I struggle, fight dark forces in the clear moon light Without fear, insomnia, I can’t get no sleep Me quoting  Faithless lyrics of course shows my age and that I am a true child of the nineties. Oh well. Having insomnia however, is a (fairly) new one for me. You see, I can’t remember not having anemia,Read more

10 Things to take to the Hospital with You

IBDers often are hospital frequent flyers. While I don’t keep a packed bag around, over the years, I have gotten a routine down, and so have my loved ones in case I am not able to pack my bag. Here is what I find essential to take to the hospital- for practical reasons and because I need them for my mental well-being (which is equally important). Update Oct 29: I have included feedback that I got from the members ofRead more

What to wear…. with a transrectal drain and other Tipps

As I wrote in a previous post, I had a huge infection after my first two surgeries, that required two more surgeries, in which they extracted about a liter of pus, washed me out and tried to get the environment as sterile as possible. In spite of targeted intravenous antibiotics, I kept developing abscesses in my stomach. This is apparently not unusual- I mean, my stomach perforated, all the bacteria had new room to grow, and my body was ratherRead more

Diets and Superfood Fads

If I hate something with a passion, then it’s all these diet fads that show up and supposedly cure everything from ingrown toenails to cancer and of course Crohn’s and Colitis. I like it even better, if they are advertised by people who claim to have suffered from IBD, and then “cured” themselves by “eating right.”  Usually, these people had Crohn’s for less than five years. I wish them well- because their world is going to crumble when they haveRead more

My Life on Hold

Dear Medical Facilities around the World: Change your background music when you place people on hold. I know that at some point some study was done that classical music supposedly calms people and changes their mood for the better, but you know what? It’s not true. Here are the most played classical pieces when you are put on hold on the phone, based on my experience: 1) Mozart- Eine kleine Nachtmusik, most often the third movement. 2) Strauss (junior andRead more