A Pandemic Diary: Stay home and keep your distance. Please.

It’s been roughly two months since we started social distancing, working from home, wearing a mask, staying home. And everywhere, the calls for opening back up the economy become louder. Because not as many people are getting sick after all, right? It’s as German virologist Christian Drosten says, “there is no glory in prevention.” For now, in my workplace, things are staying the same. The school decided early on to close until the end of the school year, and IRead more

Remicade in the Time of Corona

I had a remicade appointment this morning. Driving through Portland to get there was eerie- barely any cars, barely any people, in a city where one of the favorite complaints of people is traffic. I got a parking spot right in front of the clinic- most of those are usually taken by 7am, I was there at 11, in a record time, without me speeding (believe it or not). When I entered the Oregon Clinic, what struck me was theRead more

Update: Same procedure as every year

Friday, I had my annual colonoscopy. This year, I tweaked my prep a little bit. I splurged, and got lobster broth, as well as clear protein drinks. The broth I would get again, the drinks just made me queasy. But, it was worth a try. As usual, I over prepared, so by the time I arrived, I had a raging dehydration headache. I also asked for three warm blankets as I was waiting on my gurney- it was sooo cold.Read more

Online Groups- the double-edged sword?

When I grew up in the 1980’s, I was the only one with Crohn’s far and wide. It was not a very common disease for children (or it was not diagnosed very often, who knows?). The internet wasn’t around yet. The German DCCV e.V was around, but at the time only through print publication, and again, mostly for grown-ups. And while I did indeed feel lonely at times, I can see the good in this too- I was simply forcedRead more

Nurses Appreciation Week: Thank you

  This week (May 6th to May 12th) is Nurses Appreciation Week. I am always torn about xx Profession appreciation week. The cynic in me says that if we paid teachers and nurses and caregivers better, we would truly show our appreciation as a society. But, we can still show our appreciation on a personal level. One way is to vote in local elections, and look at the candidates- what do they say about health and care givers? Is itRead more

About that semi-colon tattoo…

This year, Mental Health Awareness month is May. And for a few years now, I have seen articles and blog posts about semi-colon tattoos pop up in my timeline. People get them to raise awareness for mental health and suicide awareness, because a semi-colon continues a sentence that would have ended otherwise. Usually the words “powerful” are somewhere to be found in the article. In my corner of the internet, that is IBD groups and Instagram, every year, people getRead more

My Quest with Quest, part II

You can read part I of my rant about Quest Diagnostics here. The next day, I had dog training, in Northwest Portland, then drove back to my house, dropped the dog off, and went back. Because 84 East is always busy, I decided to drive down Burnside street, which of course was full of construction, so that it took me 30 minutes to get to the lab (inside safeway) instead of 20.  I get in, prepared to wait, as IRead more

WHAT’S IN MY BAG: Protest Edition

This saturday, March 24, I went to the March for our lives. I had been back and forth about going, because quite honestly, I don’t like crowds, I was worried about violence, I worried about restrooms… Then, I pushed myself, and I am glad I went. I can assure you that standing outside in Portland in March is fun, but I was in great company- my neighbor and her sweet, sweet daughter came too.  Also, it was the first timeRead more

Here’s why people who “don’t look sick” use the disabled toilets

  This one is for the bathroom police, that is, those who feel compelled to tell others that they can’t use the disabled stalls, because they don’t deem them disabled. One would think in the year 2018 and with 117 Million Americans suffering from a chronic disease, this shouldn’t happen anymore, but it happens. All the time. It has happened to me (and ended badly for the other person), it has happened to friends of mine, and while I don’tRead more

Dear Public Restrooms….

I wish… …you were clean, all the time. I would happily pay a quarter every time just to have that assurance. I am not even asking for a self-cleaning toilet.  Alas, I am taking clorox wipes with me wherever I go. … stalls were sound and smell proof. Seriously, what is this metal wall in between business? It’s bad enough for me to know that I can make these sounds, does the world need to know? …if you don’t haveRead more