I’ll make this one really short….

I have been in the privileged position to have health insurance through my husband, but I have friends relying on the Affordable Care Act. They will be the first to tell you that there are kinks in the system and that it is far from perfect.

But for those of you, who don’t remember the time before 2010, I’ll invite you to go to any online forum for chronic illnesses. Read more

Hey, FDA

  Hey, FDA: I am tired of being infantilized as a patient. I am really tired. With the increasing number of people being addicted to painkillers and other drugs, you have decided, that it’s best to crack down, to make it harder to obtain these products, and to monitor emergency rooms. You’re overlooking that most opioid people addicted to opioids actually did not get them prescribed, but had them illegally- they stole from a friend etc. As Maia Szalavitz ofRead more

It’s Tuesday, and I am tired…

Even though I am a lapsed, non-practicing Catholic, there are certain ways that this belief system has shaped the way I think. I associate my grandfather with Catholicism, and how his fierce beliefs in justice often brought him pretty close to liberation theology. The whole flipping tables and whipping people thing that Jesus did? Tots okay in my grandpa’s book. If there was an injustice, he called it out, and it was a way to articulate his catholic identity toRead more

Insomnia- I can’t get no sleep

Deep in the bosom of the gentle night Is when I search for the light Pick up my pen and start to write I struggle, fight dark forces in the clear moon light Without fear, insomnia, I can’t get no sleep Me quoting  Faithless lyrics of course shows my age and that I am a true child of the nineties. Oh well. Having insomnia however, is a (fairly) new one for me. You see, I can’t remember not having anemia,Read more

Nation of Pill-Poppers part II

In the early days of this blog, I wrote about my perceived overprescription of opioid painkillers, how chronic disease fits in there, and why doctors often don’t have much choice in the matter. It turns out the CDC thinks the same. “More than 40 Americans die each day from prescription opioid overdoses, we must act now,” said CDC Director Tom Frieden, M.D., M.P.H. “Overprescribing opioids—largely for chronic pain—is a key driver of America’s drug-overdose epidemic. The guideline will give physiciansRead more

Resilience and Determination- a guest post, part two

This is James Gunter’s story, part II.  You can find Part One here.   When I awoke I did not find what I expected. They had told me that an appendicitis is a quick and easy operation these days which can be done through keyhole surgery. This would involve making 3 small cuts in my lower abdomen to remove my appendix. When I awoke in the recovery ward and managed to stay awake for more than 30 seconds, I decidedRead more

Speaking at the CCFA Nurses’ Education Program

Last week, Mark from the CCFA support group sent out a call for panel members for a CCFA education event for nurses. I wasn’t sure whether I should participate, because, what should I say. Yes, I have a blog where I tell the whole wide world about Verena and the Crohn’s and yet, it’s not the same- I can rethink my words, I can re-write, edit, and work on blog posts. And still, I felt I needed to put myRead more

Nation of Pill-Poppers

I perceive a lot of cultural differences when it comes to dealing with pain in the US and in Germany, and as in so many ways, I am split in the middle. I don’t believe in sticking out pain. When I don’t feel well, I take something. I also like being in full possession of my mental faculties though. With the regularity of a Swiss clockwork, NPR and other reputable news sources cover stories about pain killer abuse, and attemptsRead more