Dentists…

I hate going to the dentist. Not because of the pain (not a fan of it, but it’s not awful), but because of the air of moral superiority I encounter every damn time. Through a miracle, I have had fairly good teeth throughout my life. No root canals, a few fillings, two wisdom teeth pulled. So I have been lucky. IBD can manifest orally as well: Mouth ulcers and swelling of the lips, often due to malabsorption of nutrients andRead more

Vaccinations: just do it.

Please vaccinate. Please. For me. For you. For everybody. The Mighty ran a story on a Bizarro cartoon that shows mythical beings (a mermaid, Leprechaun and a unicorn) sitting in a circle, welcoming their newest group member: the myth that vaccine causes autism. I thought it was pretty funny and spot on. Apparently not to anti vaxxers.  I am bothered to even dignify a study that has been disputed a long time ago , or to talk about whether vaccinesRead more

My 17 in 17 challenge

I have been going back to exercise classes after Thanksgiving. During my childhood and youth and well into my twenties, I hated any form of exercise with passion. One, I was shit at it, and very often just too sick to do anything. Second, German PE teachers are assholes. #notallgermanpeteachers you want to say? No, all of them. One of my favorite writers, Arnold Stadler once wrote that there were two types of PE teachers at his High school. ThoseRead more

Favorites: scar-care

Disclaimer: I am not being paid by anyone to review these products. I take skincare very, very seriously. Around 6% of IBD sufferers may actually have eczema as a symptom, and with all the meds we are taking, our skin can go through some changes, Azathioprine for example, makes your skin extremely light sensitive. So, be careful, wear your SPF, and always read ingredient lists on your products. I try to avoid anything with mineral oil in it- for ethicalRead more

Progressives, you have ableist privilege.

I would consider myself a progressive liberal, by all means and definitions. I have written about how the election has upset me and left me reeling. And of course, instead of showing a unified front, the left has nothing better to do than tearing into each other. While the orange man silently worked to foster his business interests and dismantle freedom of the press, we discussed whether wearing safety pins is the way to go or not. We discussed whoRead more

This week in treat yo’self: The Spoonie Essentials Box

DISCLAIMER: I am NOT being paid by anyone to review this. I love getting packages. Whether it is books, farm to table, Sunbasket meals, or even wines (I stopped that one since it was a bit too decadent to me), I am excited by it. It makes my life easier. Apparently others thought about this too, and connected the dots for chronic pain patients. It’s called “The Spoonie Essentials Box”. Here’s what their media kit says: I am intrigued byRead more

Hey, FDA

  Hey, FDA: I am tired of being infantilized as a patient. I am really tired. With the increasing number of people being addicted to painkillers and other drugs, you have decided, that it’s best to crack down, to make it harder to obtain these products, and to monitor emergency rooms. You’re overlooking that most opioid people addicted to opioids actually did not get them prescribed, but had them illegally- they stole from a friend etc. As Maia Szalavitz ofRead more

Friday Fun: a commentary 

Today’s post is from my brilliant friend B. He has cerebral palsy, and his humor is a constant inspiration. Post-Event Cerebral Palsy Adaptation Report #8748373-6D Scenario: overcrowded department party. Human density: 3 elbow-endowed humans in wool suits per square foot. Problem: greater than zero chance of cataclysmic spillage of staining liquid and/or sauce due to jostling or critical loss of balance and/or maxillofacial injury at the hands of gravity. Solution: ordered white wine instead of red to minimize staining potentialRead more

Favorite Medical Shows

You’d think having been in the hospital so often makes me sick of them, and not want to watch medical dramas in my free time. Or, that I’d really be pissed about medical inaccuracies- eh. In fact, I love em. Grey’s Anatomy: I started watching Grey’s when I was in Grad school, as an stress relief so to speak. Soon I began to see similarities between academia and what the young doctors went through. A world/job which takes over yourRead more

World IBD Day: In celebration of community

Throughout the day, I have posted about IBD, and IBD awareness- there are many blogs and foundations that provide support, education and connection among the IBD community. They give me ideas for blog posts, they give me feedback on blog posts, and while I am all about educating people about symptoms and treatments (and warn them of quacks), I think another aspect of the disease that often is underestimated is the loneliness that many people feel with it. And IRead more