New Year’s Resolutions for People with Chronic Illnesses

If you’re anything like us, you probably spent a good chunk of 2018 dealing with your chronic illness, adjusting to new developments and learning from the hard knocks along the way. We’re not big believers in New Year’s resolutions, but we like to make lists and bring visibility to chronic illness, especially of the invisible variety. These New Year’s resolutions are an accumulation of some insights and hopes for the new year. We know that different conditions require different handling and that not all of these resolutions will work for everyone. We all have different experiences and life situations and that’s cool! But we want to share these resolutions to show solidarity, help allies support friends and family and let others with chronic illness know: you’re not alone.Read more

Advertisements

Minimalism and my Discontents

Does item x bring me joy? Does its energy weigh me down, or is the chi trapped in the room? If so, get rid of it. Box it for a while some say, then get rid of it.

Simplicity. Clarity. Think of what you need, not what you want. What could be wrong with it?Read more

Here’s why people who “don’t look sick” use the disabled toilets

  This one is for the bathroom police, that is, those who feel compelled to tell others that they can’t use the disabled stalls, because they don’t deem them disabled. One would think in the year 2018 and with 117 Million Americans suffering from a chronic disease, this shouldn’t happen anymore, but it happens. All the time. It has happened to me (and ended badly for the other person), it has happened to friends of mine, and while I don’tRead more

Dentists…

I hate going to the dentist. Not because of the pain (not a fan of it, but it’s not awful), but because of the air of moral superiority I encounter every damn time. Through a miracle, I have had fairly good teeth throughout my life. No root canals, a few fillings, two wisdom teeth pulled. So I have been lucky. IBD can manifest orally as well: Mouth ulcers and swelling of the lips, often due to malabsorption of nutrients andRead more

Vaccinations: just do it.

Please vaccinate. Please. For me. For you. For everybody. The Mighty ran a story on a Bizarro cartoon that shows mythical beings (a mermaid, Leprechaun and a unicorn) sitting in a circle, welcoming their newest group member: the myth that vaccine causes autism. I thought it was pretty funny and spot on. Apparently not to anti vaxxers.  I am bothered to even dignify a study that has been disputed a long time ago , or to talk about whether vaccinesRead more

My 17 in 17 challenge

I have been going back to exercise classes after Thanksgiving. During my childhood and youth and well into my twenties, I hated any form of exercise with passion. One, I was shit at it, and very often just too sick to do anything. Second, German PE teachers are assholes. #notallgermanpeteachers you want to say? No, all of them. One of my favorite writers, Arnold Stadler once wrote that there were two types of PE teachers at his High school. ThoseRead more

Favorites: scar-care

Disclaimer: I am not being paid by anyone to review these products. I take skincare very, very seriously. Around 6% of IBD sufferers may actually have eczema as a symptom, and with all the meds we are taking, our skin can go through some changes, Azathioprine for example, makes your skin extremely light sensitive. So, be careful, wear your SPF, and always read ingredient lists on your products. I try to avoid anything with mineral oil in it- for ethicalRead more

Progressives, you have ableist privilege.

I would consider myself a progressive liberal, by all means and definitions. I have written about how the election has upset me and left me reeling. And of course, instead of showing a unified front, the left has nothing better to do than tearing into each other. While the orange man silently worked to foster his business interests and dismantle freedom of the press, we discussed whether wearing safety pins is the way to go or not. We discussed whoRead more

This week in treat yo’self: The Spoonie Essentials Box

DISCLAIMER: I am NOT being paid by anyone to review this. I love getting packages. Whether it is books, farm to table, Sunbasket meals, or even wines (I stopped that one since it was a bit too decadent to me), I am excited by it. It makes my life easier. Apparently others thought about this too, and connected the dots for chronic pain patients. It’s called “The Spoonie Essentials Box”. Here’s what their media kit says: I am intrigued byRead more

Hey, FDA

  Hey, FDA: I am tired of being infantilized as a patient. I am really tired. With the increasing number of people being addicted to painkillers and other drugs, you have decided, that it’s best to crack down, to make it harder to obtain these products, and to monitor emergency rooms. You’re overlooking that most opioid people addicted to opioids actually did not get them prescribed, but had them illegally- they stole from a friend etc. As Maia Szalavitz ofRead more