I’ll make this one really short….

I have been in the privileged position to have health insurance through my husband, but I have friends relying on the Affordable Care Act. They will be the first to tell you that there are kinks in the system and that it is far from perfect.

But for those of you, who don’t remember the time before 2010, I’ll invite you to go to any online forum for chronic illnesses. Read more

Advertisements

Hey, FDA

  Hey, FDA: I am tired of being infantilized as a patient. I am really tired. With the increasing number of people being addicted to painkillers and other drugs, you have decided, that it’s best to crack down, to make it harder to obtain these products, and to monitor emergency rooms. You’re overlooking that most opioid people addicted to opioids actually did not get them prescribed, but had them illegally- they stole from a friend etc. As Maia Szalavitz ofRead more

The infection saga II: MRSA

I was put on two different antibiotics, and about a day after the last blog post, my abscess started to drain. I’ll spare you the yukky details. On Monday, the cultures had finally gotten back to my doctor- it was MRSA indeed! So the cephalexin that I had been taking had pretty much been useless, and it was discontinued.  Bactrim, the other antibiotic however, was the one that had been helping. Awesome, finish that round, do the hibiscin showers, andRead more

Insomnia- I can’t get no sleep

Deep in the bosom of the gentle night Is when I search for the light Pick up my pen and start to write I struggle, fight dark forces in the clear moon light Without fear, insomnia, I can’t get no sleep Me quoting  Faithless lyrics of course shows my age and that I am a true child of the nineties. Oh well. Having insomnia however, is a (fairly) new one for me. You see, I can’t remember not having anemia,Read more

Nation of Pill-Poppers part II

In the early days of this blog, I wrote about my perceived overprescription of opioid painkillers, how chronic disease fits in there, and why doctors often don’t have much choice in the matter. It turns out the CDC thinks the same. “More than 40 Americans die each day from prescription opioid overdoses, we must act now,” said CDC Director Tom Frieden, M.D., M.P.H. “Overprescribing opioids—largely for chronic pain—is a key driver of America’s drug-overdose epidemic. The guideline will give physiciansRead more

Depression is hurting everyone around you, too

Lately, clinical depression, and mental health in general, has gotten more of the media attention it deserves. Brave patients have come forward and described what it feels like. Artists have visualized depression, and about a year ago, several articles about semi-colon tattoos made the rounds (evoking the ire of parts of the IBD community, but that’s another story). Here are the issues that I have: a) depression has many, many faces, yet, articles tend to focus on sadness and beingRead more

The “Big Pharma” Conspiracy

I love living in Portland. I love its alternative culture that brings forth great art, culture, and just a  lot of fun quirkiness.   And yet, this lovable city with its lovely inhabitants at times frustrates me to no end, especially when I am being told that I let myself be lulled by “Big Pharma.” The narrative is, in variations, the same: Nature knows best, the pharmaceutical industry is in cahoots with the government (and probably the Vatican too) soRead more

Speaking at the CCFA Nurses’ Education Program

Last week, Mark from the CCFA support group sent out a call for panel members for a CCFA education event for nurses. I wasn’t sure whether I should participate, because, what should I say. Yes, I have a blog where I tell the whole wide world about Verena and the Crohn’s and yet, it’s not the same- I can rethink my words, I can re-write, edit, and work on blog posts. And still, I felt I needed to put myRead more

Making Pacts with the Devil- an update on me

When people ask me what it’s like living with a chronic disease, I sometimes say that it’s like making a pact with the devil. Let me elaborate: The best known pact with the devil in literature is probably Goethe’s Faust (ok, maybe Christopher Marlowe too!). Faust, the protagonist, has a terrible problem: He’s educated, good looking, no shortage of money, generally in a good place, but no, Faust is super unhappy. He wants to know more! He wants to doRead more