Remicade Protocol

It’s been a while since I have written about my health. I had an uneventful colonoscopy, that at first didn’t show much inflammation. Then the biopsy result did end up showing inflammation. As a result, my Remicade dose was increased. Let’s keep our fingers crossed. Today was Remi-Day. I usually ask for the earliest appointment of the day, just to be done with it. I will sing the praises of Remicade any day, but I really, really wish it wasRead more

Speaking at the CCFA Nurses’ Education Program

Last week, Mark from the CCFA support group sent out a call for panel members for a CCFA education event for nurses. I wasn’t sure whether I should participate, because, what should I say. Yes, I have a blog where I tell the whole wide world about Verena and the Crohn’s and yet, it’s not the same- I can rethink my words, I can re-write, edit, and work on blog posts. And still, I felt I needed to put myRead more

My Life on Hold

Dear Medical Facilities around the World: Change your background music when you place people on hold. I know that at some point some study was done that classical music supposedly calms people and changes their mood for the better, but you know what? It’s not true. Here are the most played classical pieces when you are put on hold on the phone, based on my experience: 1) Mozart- Eine kleine Nachtmusik, most often the third movement. 2) Strauss (junior andRead more

Best of Crohn’s comments: a list

I previously posted this list on a social network site, so apologies for cross-posting. Since then some stuff got added. These are comments and suggestions I have heard since I was a child- so at some point I started collecting them for fun. I used to get upset and angry, but now I think they are just funny in their warped, bizarre way. Here we go: “Crohn’s, yeah, that is one of these psycho-diseases. “You know, a lot of theseRead more