Navigating Healthcare Anxiety
A hard rain’s gonna fall. It’s been a few weeks after the election, and the changes that are coming are
Tag: crohn’s
To Port or Not to Port?
After all the infusion drama last year, I thought I had lucked out: The company that provides my infusions has a dedicated nurse come to my house every six weeks, and while there have been some schedule changes (mostly around my traveling!). I truly like my regular nurse, and while the slower pumps that they are using stretch the overall infusion time, it’s fine, I am at home, and can move around, get some work done.
All of this changed with my regular nurse needing surgery and recovery herself.
It’s been a while….
Hello Friends! It’s been a while! A long while indeed, so a little update about me, my Crohn’s and its
I had my appointment! I had an infusion! (update on the infusion adventure)
“Ich hân mîn lêhen, al die werlt, ich hân mîn lêhen!” jubilated German Poet Walther von der Vogelweide (1170ish- 1230ish)
Fall Surprise: Covid 19.
It was November 14, and I spoke to my cousin on the phone. She asked me if I had had
Remicade vs. Inflectra
About three months ago, I received a letter from my insurance, saying they wouldn’t cover my Remicade (infliximab) infusion any
2020 in Pictures
What a year! It started with the US almost going to war with Iran (remember that?), and it ended with
You’re not a burden
The New York Times has done it again. First, they invited a racist senator to write an op-ed, didn’t read
Earthquake Supplies for People with IBD
Throughout the years, I have lived in several places that were prone to natural disasters. New Zealand is earthquake territory, so was California (even though to a lesser extent), and Indiana has tornadoes (thank god, I never had to experience one). The earthquakes I did experience were really small, a little rumble. Now however, I live in the Pacific Northwest, where within the next 50 years, a major quake (around 9 on the scale) is about to hit, another great Cascadia Earthquake.
Things I am tired of hearing about not having kids….
why don’t you want kids? (none of your beeswax) oh, one day, you’ll change your mind (one day I may
The Morbus Crohnicles 