Word Warrior Wednesday: “You fight and you survive”

Today’s Word Warrior Wednesday is a quote from Jamie Weisman, whose book “As I live and Breathe” I’ll review pretty soon. It’s pretty powerful, and so I’ll leave it un-commented. “Most people live in fear of some terrible event changing their lives. For the chronically ill, this terrible event has already happened, and we have been let in on an amazing secret. You fight and you survive. There is no other way. You adapt, and your life changes, but inRead more

On Gratitude and Awareness

Thanksgiving came and went, and I have been thinking hard about writing a gratitude post. Do I have things to be thankful for? Absolutely, my cup brimmeth over and it would have been a veritable Oscar speech. I could fill the pages. Someone told me, “Thankfulness is something that you need to practice everyday, it’s nice to have a holiday for it, but if you don’t practice gratitude everyday, no holiday can help you.” I was just going to sayRead more

Speaking at the CCFA Nurses’ Education Program

Last week, Mark from the CCFA support group sent out a call for panel members for a CCFA education event for nurses. I wasn’t sure whether I should participate, because, what should I say. Yes, I have a blog where I tell the whole wide world about Verena and the Crohn’s and yet, it’s not the same- I can rethink my words, I can re-write, edit, and work on blog posts. And still, I felt I needed to put myRead more

Review: NYT in-depth report on Crohn’s Disease

I love the New York times. Not only does it have a LOT of their information for free online, it also covers most aspects of modern life. Their health section is truly to be recommended, the writers manage to break down complex matter for interested lay audiences, just as myself. I prefer them over wikipedia most of the time, because of quality control. Anyone can edit a wikipedia article, and I simply trust the NYT more. I just found outRead more

The Mountain Calls- a Remission Story

“The mountain calls”- “der Berg ruft” is a common saying in Southern Germany, Austria and Switzerland, that is, everywhere we have mountains. It derives from the famous 1937 movie of the same title, by the unforgettable Luis Trenker (yes, this was before he had his own clothes line). It’s about the first person climbing the Matterhorn. I’ll save you an essay about Mountain films. When I was in the hospital this January, I was on ward 10 B, I hadRead more

Travelling with IBD II – Carry- on and outfits

 You booked your flight, you have planned your trip, you’ve packed your suitcase. Now for your carry-on. What: I prefer a backpack and a purse, small enough that I can put it in the backpack if necessary. I have never understood people with trolley’s for carry-on (exception, people with kids). What in the world is in there?! Most people with IBD suffer from back pain, often mild arthritis etc. So do your backpack research!  About six years ago, I investedRead more

Take Steps 2015, the good, the bad and opportunities for next year

Yesterday, I went to Take Steps2015- the annual fundraising walk that the local chapters of the CCFA. The Northwest Chapter of the US is mainly located in Seattle, the Portland Chapter is much smaller. When I went to the Crohn’s and Colitis Support group meeting in April however, a representative of Take Steps was there, advertising the event. So, a good month later, my better half and I put on our walking shoes and went to the event. I haveRead more

Kate Keen Photography- an Interview

Today, I have the honor of featuring an interview with photographer Kate Keen. She is a Bournemouth-based photographer, who also suffers from Crohn’s. I came across her work through the #getyourbellyout group (check them out on facebook). On her website she is featuring a series of pictures of  Crohn’s and Colitis patients, proudly and defiantly showing their scars. As she is in England and I am in Portland, I sent her my questions. Here are her answers: A general questionRead more