Speaking at the CCFA Nurses’ Education Program

Last week, Mark from the CCFA support group sent out a call for panel members for a CCFA education event for nurses. I wasn’t sure whether I should participate, because, what should I say. Yes, I have a blog where I tell the whole wide world about Verena and the Crohn’s and yet, it’s not the same- I can rethink my words, I can re-write, edit, and work on blog posts. And still, I felt I needed to put myRead more

I’m in remission (whatever that means…)- a guest post

I am welcoming my first guest blogger, Mark McNamara! Mark has had Crohn’s disease for 22 years. Originally from Colorado, he currently lives in Portland, OR. With the support of the Crohn’s and Colitis Foundation of America, Mark facilitates a support group in Portland for patients with IBD. Mark works for the Oregon Health & Science University and enjoys hiking and stand up paddle boarding. I’m in remission (whatever that means…) I’m in remission, whatever that means. It’s been fourRead more

Take Steps 2015, the good, the bad and opportunities for next year

Yesterday, I went to Take Steps2015- the annual fundraising walk that the local chapters of the CCFA. The Northwest Chapter of the US is mainly located in Seattle, the Portland Chapter is much smaller. When I went to the Crohn’s and Colitis Support group meeting in April however, a representative of Take Steps was there, advertising the event. So, a good month later, my better half and I put on our walking shoes and went to the event. I haveRead more