Insomnia- I can’t get no sleep

Deep in the bosom of the gentle night Is when I search for the light Pick up my pen and start to write I struggle, fight dark forces in the clear moon light Without fear, insomnia, I can’t get no sleep Me quoting  Faithless lyrics of course shows my age and that I am a true child of the nineties. Oh well. Having insomnia however, is a (fairly) new one for me. You see, I can’t remember not having anemia,Read more

I’m in remission (whatever that means…)- a guest post

I am welcoming my first guest blogger, Mark McNamara! Mark has had Crohn’s disease for 22 years. Originally from Colorado, he currently lives in Portland, OR. With the support of the Crohn’s and Colitis Foundation of America, Mark facilitates a support group in Portland for patients with IBD. Mark works for the Oregon Health & Science University and enjoys hiking and stand up paddle boarding. I’m in remission (whatever that means…) I’m in remission, whatever that means. It’s been fourRead more

Making Pacts with the Devil- an update on me

When people ask me what it’s like living with a chronic disease, I sometimes say that it’s like making a pact with the devil. Let me elaborate: The best known pact with the devil in literature is probably Goethe’s Faust (ok, maybe Christopher Marlowe too!). Faust, the protagonist, has a terrible problem: He’s educated, good looking, no shortage of money, generally in a good place, but no, Faust is super unhappy. He wants to know more! He wants to doRead more

Positive Thinking- the Health Movement’s form of Blaming the Victim

The first time I was in the United States was in 2004. I was an exchange student who had moved from an urban European mass university to a small liberal arts college in the Midwest. George W. Bush was still president and would win a second term while I was there. At the age of 23, I stayed in a dorm full of freshmen, and did not especially care to be lectured on “no sex before marriage.” After two weeks,Read more