Update: Same procedure as every year

Friday, I had my annual colonoscopy. This year, I tweaked my prep a little bit. I splurged, and got lobster broth, as well as clear protein drinks. The broth I would get again, the drinks just made me queasy. But, it was worth a try. As usual, I over prepared, so by the time I arrived, I had a raging dehydration headache. I also asked for three warm blankets as I was waiting on my gurney- it was sooo cold.Read more

About that semi-colon tattoo…

This year, Mental Health Awareness month is May. And for a few years now, I have seen articles and blog posts about semi-colon tattoos pop up in my timeline. People get them to raise awareness for mental health and suicide awareness, because a semi-colon continues a sentence that would have ended otherwise. Usually the words “powerful” are somewhere to be found in the article. In my corner of the internet, that is IBD groups and Instagram, every year, people getRead more

Crohn’s and the academic job market- a tale

The abysmal situation of the academic job market has received a lot of coverage in recent years, with not much changing, sadly. You can separate academics into different camps: adjuncts and job seekers, the tenured who have compassion but feel helpless, and those who think that everything is amazing the way it is, and who should just shut the hell up and take it. Let me backup and explain the types of academic labor: Tenure-track: This is the unicorn amongRead more

Here’s why people who “don’t look sick” use the disabled toilets

  This one is for the bathroom police, that is, those who feel compelled to tell others that they can’t use the disabled stalls, because they don’t deem them disabled. One would think in the year 2018 and with 117 Million Americans suffering from a chronic disease, this shouldn’t happen anymore, but it happens. All the time. It has happened to me (and ended badly for the other person), it has happened to friends of mine, and while I don’tRead more

Dear Public Restrooms….

I wish… …you were clean, all the time. I would happily pay a quarter every time just to have that assurance. I am not even asking for a self-cleaning toilet.  Alas, I am taking clorox wipes with me wherever I go. … stalls were sound and smell proof. Seriously, what is this metal wall in between business? It’s bad enough for me to know that I can make these sounds, does the world need to know? …if you don’t haveRead more

Remicade Protocol #237472

It was Remi-Day on Monday. Praise the lawd I guess, because I sure had flare symptoms. I didn’t sleep well and thought I could take care of that at the practice. But no, this didn’t happen because they must have booked several people at once. So as I get my chair, I overhear that Travis’ ex got engaged, only a year after their break up (tut tut), I hear another man describing his golf adventure in painful detail, and IRead more

No, I don’t like being randomly touched. Thank you.

When I was in South Africa last month, the wedding couple organized a wine tour for the wedding guests. We went to Paarl and Franchoek and they had picked four very different and unique wineries. (Thank you guys!!). The first winery was Fairview. It is beautifully built, has great wines, and fantastic cheeses (which we unfortch couldn’t take with us). Heck, they even had bretzels. Outside the winery are beautiful gardens, and a goat enclosure. They don’t mess around, thereRead more

Remicade Protocol 4859

Monday was Remi day- I had it scheduled around my upcoming South Africa trip (you want to have it in advance but not the day before). I usually take the first appointment in the morning, because I hate waiting. It was 7.30 am sharp as I walked up to the counter, only to be reprimanded by the guy behind it. Apparently check-in time was 20 minutes early. I gave him a sharp and nasty look, and said, “nobody is hereRead more

My 17 in 17 challenge

I have been going back to exercise classes after Thanksgiving. During my childhood and youth and well into my twenties, I hated any form of exercise with passion. One, I was shit at it, and very often just too sick to do anything. Second, German PE teachers are assholes. #notallgermanpeteachers you want to say? No, all of them. One of my favorite writers, Arnold Stadler once wrote that there were two types of PE teachers at his High school. ThoseRead more

I’ll make this one really short….

I have been in the privileged position to have health insurance through my husband, but I have friends relying on the Affordable Care Act. They will be the first to tell you that there are kinks in the system and that it is far from perfect.

But for those of you, who don’t remember the time before 2010, I’ll invite you to go to any online forum for chronic illnesses. Read more