Friday, I had my annual colonoscopy. This year, I tweaked my prep a little bit. I splurged, and got lobster broth, as well as clear protein drinks. The broth I would get again, the drinks just made me queasy. But, it was worth a try. As usual, I over prepared, so by the time I arrived, I had a raging dehydration headache. I also asked for three warm blankets as I was waiting on my gurney- it was sooo cold.Read more
My uneasiness with how Netflix treats Misty Knight’s disability
I am leaving the IBD realm to write about disability in superhero representationRead more
Today it’s just a link!
I wrote an article on the HBO show “Sharp Objects”. Check it out here!Read more
Online Groups- the double-edged sword?
When I grew up in the 1980’s, I was the only one with Crohn’s far and wide. It was not a very common disease for children (or it was not diagnosed very often, who knows?). The internet wasn’t around yet. The German DCCV e.V was around, but at the time only through print publication, and again, mostly for grown-ups. And while I did indeed feel lonely at times, I can see the good in this too- I was simply forcedRead more
Nurses Appreciation Week: Thank you
This week (May 6th to May 12th) is Nurses Appreciation Week. I am always torn about xx Profession appreciation week. The cynic in me says that if we paid teachers and nurses and caregivers better, we would truly show our appreciation as a society. But, we can still show our appreciation on a personal level. One way is to vote in local elections, and look at the candidates- what do they say about health and care givers? Is itRead more
About that semi-colon tattoo…
This year, Mental Health Awareness month is May. And for a few years now, I have seen articles and blog posts about semi-colon tattoos pop up in my timeline. People get them to raise awareness for mental health and suicide awareness, because a semi-colon continues a sentence that would have ended otherwise. Usually the words “powerful” are somewhere to be found in the article. In my corner of the internet, that is IBD groups and Instagram, every year, people getRead more
Minimalism and my Discontents
Does item x bring me joy? Does its energy weigh me down, or is the chi trapped in the room? If so, get rid of it. Box it for a while some say, then get rid of it.
Simplicity. Clarity. Think of what you need, not what you want. What could be wrong with it?Read more
My Quest with Quest, part II
You can read part I of my rant about Quest Diagnostics here. The next day, I had dog training, in Northwest Portland, then drove back to my house, dropped the dog off, and went back. Because 84 East is always busy, I decided to drive down Burnside street, which of course was full of construction, so that it took me 30 minutes to get to the lab (inside safeway) instead of 20. I get in, prepared to wait, as IRead more
Looking for lost time…
I wish there was a way to keep track of the time we spend dealing with health. Even when I am doing well, as I am at the moment, it still takes time. Time that I don’t really have. Example: My doctor wanted me to have my remicade levels tested. A simple blood test, done about a week before your remicade appointment. So I ask whether I just go downstairs to their lab. No. Because this specific test has beenRead more
Focus on Art: Yayoi Kusama
When I was in New Zealand last month, I went to the Auckland Art Gallery. I love art for several reasons- it triggers an emotional response, that I, who reads and writes for a living often cannot express in words right away, it pushes me to explore my feelings, thoughts and reactions, and ultimately teaches me about myself. For my academic self, I am always interested in the how and the what. How does the curator use the space available,Read more
