New Year’s Resolutions for People with Chronic Illnesses

If you’re anything like us, you probably spent a good chunk of 2018 dealing with your chronic illness, adjusting to new developments and learning from the hard knocks along the way. We’re not big believers in New Year’s resolutions, but we like to make lists and bring visibility to chronic illness, especially of the invisible variety. These New Year’s resolutions are an accumulation of some insights and hopes for the new year. We know that different conditions require different handling and that not all of these resolutions will work for everyone. We all have different experiences and life situations and that’s cool! But we want to share these resolutions to show solidarity, help allies support friends and family and let others with chronic illness know: you’re not alone.Read more

What’s in my bag? -Post-op Crohn’s Edition

As a German, you get culturally conditioned to be prepared. We are a people of planners and what-iffers.  This can be debilitating, but it can also be empowering. In my case, it empowered me to leave the house after my surgeries, wound vac or not, trans-rectal drain or not. So, I packed my bag and went. Here are the absolute essentials that I have in that bag. Not everything is Crohn’s-related, but still useful. Sunglasses. Having lived in CA forRead more

Diets and Superfood Fads

If I hate something with a passion, then it’s all these diet fads that show up and supposedly cure everything from ingrown toenails to cancer and of course Crohn’s and Colitis. I like it even better, if they are advertised by people who claim to have suffered from IBD, and then “cured” themselves by “eating right.”  Usually, these people had Crohn’s for less than five years. I wish them well- because their world is going to crumble when they haveRead more

My Life on Hold

Dear Medical Facilities around the World: Change your background music when you place people on hold. I know that at some point some study was done that classical music supposedly calms people and changes their mood for the better, but you know what? It’s not true. Here are the most played classical pieces when you are put on hold on the phone, based on my experience: 1) Mozart- Eine kleine Nachtmusik, most often the third movement. 2) Strauss (junior andRead more