New Year’s Resolutions for People with Chronic Illnesses

If you’re anything like us, you probably spent a good chunk of 2018 dealing with your chronic illness, adjusting to new developments and learning from the hard knocks along the way. We’re not big believers in New Year’s resolutions, but we like to make lists and bring visibility to chronic illness, especially of the invisible variety. These New Year’s resolutions are an accumulation of some insights and hopes for the new year. We know that different conditions require different handling and that not all of these resolutions will work for everyone. We all have different experiences and life situations and that’s cool! But we want to share these resolutions to show solidarity, help allies support friends and family and let others with chronic illness know: you’re not alone.Read more

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a change in perspective

Remember how in the last post I wrote that the worst that could happen had already happened? Yeah, scratch that. There should be separate categories for “the worst that can happen to yourself” and “the worst that can happen to someone you love.” So, January 24, 2016, my dog needed emergency surgery because of a bowel obstruction. Yes. Exactly one year after me. If you are of the opinion that pets aren’t as important as humans and somehow feel offendedRead more

On Gratitude and Awareness

Thanksgiving came and went, and I have been thinking hard about writing a gratitude post. Do I have things to be thankful for? Absolutely, my cup brimmeth over and it would have been a veritable Oscar speech. I could fill the pages. Someone told me, “Thankfulness is something that you need to practice everyday, it’s nice to have a holiday for it, but if you don’t practice gratitude everyday, no holiday can help you.” I was just going to sayRead more

Making Pacts with the Devil- an update on me

When people ask me what it’s like living with a chronic disease, I sometimes say that it’s like making a pact with the devil. Let me elaborate: The best known pact with the devil in literature is probably Goethe’s Faust (ok, maybe Christopher Marlowe too!). Faust, the protagonist, has a terrible problem: He’s educated, good looking, no shortage of money, generally in a good place, but no, Faust is super unhappy. He wants to know more! He wants to doRead more