Word Warrior Wednesday: Desmond Tutu

I have been reading a lot about South Africa lately, namely because I will go there next year, for a wedding nonetheless! Desmond Tutu seems to have always been on the right side of history, and I loved this little reminder that I saw last Saturday, at the Mississippi Street Fair. Especially in times like these, when the pain of the oppressed and of those often overwhelm me and I feel I can’t do anything, his words can provide someRead more

a change in perspective

Remember how in the last post I wrote that the worst that could happen had already happened? Yeah, scratch that. There should be separate categories for “the worst that can happen to yourself” and “the worst that can happen to someone you love.” So, January 24, 2016, my dog needed emergency surgery because of a bowel obstruction. Yes. Exactly one year after me. If you are of the opinion that pets aren’t as important as humans and somehow feel offendedRead more

Microaggressions and IBD

“Crohn’s? Oh, that’s ok to have, it’s treatable.” “So and so has had kidney problems, you just have a dicky tummy” “You can’t feel that bad, if you are still wearing make-up” “But, you are so young! Isn’t RA only for grannies?” “You got a PhD and you have Crohn’s?” “But you look so good” If you suffer from IBD, these utterances probably sound familiar in one way or another. I will go ahead and call them microaggressions. The termRead more

Resilience and Determination- a guest post, part one

Today’s guest post is from James Gunter. He lives in Sheffield, UK, and he loves fitness. He was diagnosed with Crohn’s Disease in December 2014. This is his story. Fitness has always played a big role in my life. I was very active, I did parkour, climbing, squash, was about to get into the national squad for the aikido martial art and had never even drank alcohol or ever tasted it. I was the healthiest person I knew and mostRead more

Word Warrior Wednesday: “You fight and you survive”

Today’s Word Warrior Wednesday is a quote from Jamie Weisman, whose book “As I live and Breathe” I’ll review pretty soon. It’s pretty powerful, and so I’ll leave it un-commented. “Most people live in fear of some terrible event changing their lives. For the chronically ill, this terrible event has already happened, and we have been let in on an amazing secret. You fight and you survive. There is no other way. You adapt, and your life changes, but inRead more

On Gratitude and Awareness

Thanksgiving came and went, and I have been thinking hard about writing a gratitude post. Do I have things to be thankful for? Absolutely, my cup brimmeth over and it would have been a veritable Oscar speech. I could fill the pages. Someone told me, “Thankfulness is something that you need to practice everyday, it’s nice to have a holiday for it, but if you don’t practice gratitude everyday, no holiday can help you.” I was just going to sayRead more

Take Steps 2015, the good, the bad and opportunities for next year

Yesterday, I went to Take Steps2015- the annual fundraising walk that the local chapters of the CCFA. The Northwest Chapter of the US is mainly located in Seattle, the Portland Chapter is much smaller. When I went to the Crohn’s and Colitis Support group meeting in April however, a representative of Take Steps was there, advertising the event. So, a good month later, my better half and I put on our walking shoes and went to the event. I haveRead more

Kate Keen Photography- an Interview

Today, I have the honor of featuring an interview with photographer Kate Keen. She is a Bournemouth-based photographer, who also suffers from Crohn’s. I came across her work through the #getyourbellyout group (check them out on facebook). On her website she is featuring a series of pictures of  Crohn’s and Colitis patients, proudly and defiantly showing their scars. As she is in England and I am in Portland, I sent her my questions. Here are her answers: A general questionRead more