About Me

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My kitty Freya and I, a month before my stomach ruptured.

Hello, my name is Verena, and I have Crohn’s. I grew up in Germany, and moved to the US when I was 25. My Crohn’s was diagnosed in 1985, when I was four years old, so I barely remember any time “before the diagnosis” – a “normal life” may mean different things to me than to others. I want this place to be a space for many voices and opinions, so if you’d like to submit a guest post- be my guest and contact me!

The quick and dirty:

1985: Diagnosed after two years of back and forth

In Between: treatment with everything under the sun, hospitalizations

1998: First partial bowel resection

In between: several flares, treated with Prednisone and Imuran, hospitalization

2009-2011: Fistulas, Fistula drains, Fistula surgery

Jan 2015: Stomach Perforation. Since then five surgeries, but I am on the mend.

When I am not dealing with Crohn’s, I take care of my three cats and my dog, read and write, and enjoy the outdoors of the beautiful Pacific Northwest, where after much moving, we settled down! To more adventures!

One comment

  1. I can sympathize. I too have Crohn’s and had a fistula when I was 9. I am 54 now.

    Like you, I was just switched without my consent to Inflectra from Remicade, which had been working great for many years.

    I am now less well and I don’t k own of it’s the new drug or just a flare.

    Anyway, good luck to you.

    My name is Luke Erickson and I live in Minneapolis, Minnesota with my wife Andrea, our 16 year old son Dashiell, and a terrier named Rocky.

    Like

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